by lawrence | Dec 14, 2023 | Uncategorized
Together with the European Lung Foundation (ELF), EU-PFF has developed a guide for pulmonary fibrosis patients and their carers. In its 24 pages and 8 chapters, “Pulmonary Fibrosis: a supportive guide” covers essential aspects such as the disease itself, treatment,...
by lawrence | Dec 1, 2023 | Uncategorized
The 2023 EU-PFF BreathingLife Campaign Report (Pulmonary Fibrosis Awareness Month & IPF Awareness Week) is now available for download. It takes a detailed look at the background of the campaign, its rationale, conception and execution, as well as the collaboration...
by lawrence | Nov 10, 2023 | Uncategorized
Our adherence survey is still running until November 30th. The survey is aimed exclusively at patients who are currently receiving antifibrotic treatment and takes about 20 minutes to complete. If you are a member of a PF patient organisation or similar, please help...
by lawrence | Oct 24, 2023 | Uncategorized
The fourth session of a new series of monthly and free webinars for the Pulmonary Fibrosis community which took place on October 23rd 2023 is now available as a recording. In the session, Dr Lucilla Piccari (Hospital del Mar, Barcelona), Prof David Kiely (University...
by lawrence | Oct 18, 2023 | Uncategorized
The 4th session of a new series of monthly and free webinars for the pulmonary fibrosis community will take take place on October 23rd at 19:00 CET. Many Pulmonary Fibrosis patients develop pulmonary hypertension (PH), which can result in rapid worsening of symptoms...
