EU-PFF NEWS

How treatment burden affects the carer: the experiences of three individuals

02 Apr 2021 - 08:04

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In this issue of breathe, CEO of EU-PFF Liam Galvin talks about his life with his wife, Phyl, who passed away from Idiopathic Fulmonary Fibrosis (IPF).

The burden of treatment extends beyond the patient and can have a dramatic impact on the person in a caring role. This article shows how this burden of treatment can affect not only the person with a condition, but also those who care for them.

Read the experiences of three people who have taken on very different carer roles. The first is Lucy Pritchard whose son, Elijah, was born with bronchopulmonary dysplasia (BPD). Pam Carter then discusses her experience of caring for her mother, Eileen, who has bronchiectasis and finally the experience of EU-PFF’s CEO, Liam Galvin.

Please find the full article for download here.

Related News & Events

Next webinar on Jan 31 2024 at 7:00 pm CET: “Living with Lung Fibrosis: Optimising Mental Health and Wellbeing”

Next webinar on Jan 31 2024 at 7:00 pm CET: “Living with Lung Fibrosis: Optimising Mental Health and Wellbeing”

What can PF patients do to improve their mental health? This and other questions will be addressed by Prof Brendan Kelly, Professor of Psychiatry at Trinity College Dublin and Consultant Psychiatrist at Tallaght University Hospital, Dublin, in the upcoming session on “Living with Lung Fibrosis: Optimising Mental Health and Wellbeing”. The session will be moderated by Liam Galvin, EU-PFF CEO.