The EU-PFF, a non-profit body that brings together European national patient associations to fight for equal access to treatment and information. Established in 2016, the EU-PFF has grown from a newly established association to a trusted resource for the European Pulmonary Fibrosis community.

In agreement with General Data Protection Regulation, EU-PFF will collect the following information during registration for membership, newsletters and participation in EU-PFF arranged webinars, seminars, summits etc.: first name, last name and e-mail address and whether you are a patient, patient advocate, carer or health care professional.

The data will solely be used for these purposes and subsequent arrangements of the EU-PFF and are stored for a limited time.

Consent for use of your data for those purposes can be withdrawn any time by an email to