Benchmarking Report

To paint a picture of the current situation of IPF care in Europe, EU-PFF has developed a Benchmarking Report to identify gaps in care, compare countries’ performances and encourage the replication of best practices. What is more, the Benchmarking Report comes with concrete recommendations on how patient care can be improved both for those living with IPF and their families.

The first version covered 13 countries, and in 2020 we have expanded the second edition to include four additional countries.

The updated Report is a major achievement for our community.

The content of the Benchmarking Report represents the views of the authors only and is their sole responsibility. 

This Report is not intended as an exhaustive or scientific review of the care and management of IPF in Europe.

The interviews on which this Report is based have provided useful insights into some of the issues affecting a selection of patients living with IPF and their families. They also supported the identification of several discrepancies in IPF care within and between European countries.

Recognising that the Benchmarking Report only represents a snapshot of the IPF landscape in seventeen EU countries, the EU-PFF welcomes feedback.

The EU-PFF remembers Harry van der Haak and Maria Rigo who sadly passed away while we were working on this update. 

Their comments remain within the report with our gratitude for their inspiring advocacy work on behalf of their patient communities in Netherlands and Hungary.

Boehringer Ingelheim International GmbH, F. Hoffmann-La Roche LTD and Galapagos NV financially supported the Benchmarking Report.