When Pulmonary Fibrosis is a hereditary condition

Longfibrose Patiëntenvereniging in the Netherlands has produced an information folder

The folder contains information about familial pulmonary fibrosis – what this is, how it can be diagnosed, and what it means for family members of familial pulmonary fibrosis patients. Most people with pulmonary fibrosis are the only one in their family with the disease. But in about 20% (1 in 5) there are also affected family members. If two or more family members have pulmonary fibrosis, familial pulmonary fibrosis is diagnosed, and there is a need for genetic testing.

Read about the symptoms, needs for genetic testing and regular follow-up if Pulmonary Fibrosis occurs in more family members in the folder, which you can download here.