EU-PFF NEWS

Pulmonary Fibrosis CAB – Report on first meeting available

19 Jul 2023 - 10:07

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EU-PFF has set up a Pulmonary Fibrosis Community Advisory Board (PF-CAB) as a working group of the EU-PFF. It comprises a panel of leading European patient advocates who can also call on other international experts. PF-CAB members work together to address issues of strategic importance to the PF community. They advocate for the best possible research and improved and equal access to innovative treatments and are for PF patients. PF-CAB monitors pharmaceutical developments, research and other developments in PF through, long-term cooperation and continued dialogue with pharmaceutical partners, regulators, medical experts, and the scientific PF-community.

The report covers the first PF-CAB meeting, which was organised with Boehringer-Ingelheim. You can find it here.

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Next webinar on Jan 31 2024 at 7:00 pm CET: “Living with Lung Fibrosis: Optimising Mental Health and Wellbeing”

Next webinar on Jan 31 2024 at 7:00 pm CET: “Living with Lung Fibrosis: Optimising Mental Health and Wellbeing”

What can PF patients do to improve their mental health? This and other questions will be addressed by Prof Brendan Kelly, Professor of Psychiatry at Trinity College Dublin and Consultant Psychiatrist at Tallaght University Hospital, Dublin, in the upcoming session on “Living with Lung Fibrosis: Optimising Mental Health and Wellbeing”. The session will be moderated by Liam Galvin, EU-PFF CEO.